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@loribmt

Hello and welcome to Mayo Clinic Connect. We’re a community based forum where members share experiences to help each other find answers, offer suggestions and give support.

@roch (Laurie) gave you some great advice for your upcoming trip to Jacksonville. I’m sure it’s frustrating not knowing exactly what to expect with your appts at Mayo. As Laurie said, everyone’s case is different.

It’s wonderful that your husband will be seen at Mayo. It is a place of hope and they’ll do their best to find an answer to his lung disease. His first appointments will be the launching pad to the rest of his tests and or/procedures after he’s been examined. Mayo is unique in its ability to quickly schedule and accommodate the needs of the patient.

Often, when initial exams are arranged for first time patients, they’re told to arrange lodging for 3-7 days as an example. If your husband’s appts are all on one day it may not take longer. The Clinic also works closely with a patients PCP to possibly transfer treatment plans back home to make it more convenient for long term care.

Your husband has a Mayo Clinic number now. Has he set up his Patient Portal? If not, he can set one up in this link. It will list the appointments, times, location and what the test is for.
https://onlineservices.mayoclinic.org/content/staticpatient/showpage/patientonline
Mayo Clinic Florida - campus advice;
https://www.mayoclinic.org/patient-visitor-guide/preparing-for-your-visit/how-to-make-the-most-of-your-appointment
Your Tips on How to Get Off to the Best Start with a New Specialist: https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
https://connect.mayoclinic.org/discussion/mayo-clinic-florida-campus-advice/
Jacksonville lodging: https://connect.mayoclinic.org/discussion/jacksonville-lodging/

Visit to Jax. Mayo Clinic: https://connect.mayoclinic.org/discussion/visit-to-jax-mayo-clinic/

Have you found lodging? Do you have any questions about the campus?

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Replies to "Hello and welcome to Mayo Clinic Connect. We’re a community based forum where members share experiences..."

Thank you .. for your response! His appts are at 7 and 8:30 ..on Friday morning.. I haven’t arranged lodging .. because.. we don’t know how long we will be there.. (lots of the places I have searched says no refunds on cancellations) if he has no test over the weekend .. we might consider sight seeing (via car ride) and being back on Sunday.. if they say he had follow up appointments on Monday. I am bringing hundreds of pages of test results as well as all of his scans on disc.
Thank you.. for all the links.. I will go look at them now. We appreciate any advice we can get..