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Post Interferon Syndrome

Infectious Diseases | Last Active: 2 days ago | Replies (514)

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@deb1959

I recently posted on another forum but had no responses except for 1 person that told me I might try here instead.
I also had interpheron-ribavirin treatment for hep c and stage 4 cirrhosis 10 yrs ago. Happy to say the horrendous 48 week self injection treatment worked, and I did also as advised by my gastroenterologist, did not touch a drop of alcohol for 8yrs. Had all the horrible side effects as the majority of us did as well, and the brain fog, memory and droppsies stuck around for a long time. Thought I was on my way to a fairly normal life after those 8 yrs....was in great shape physically and mentally.....enter Covid and then the vaccine. 5 days after the Phizer vaccine I was hit like a ton of bricks with headaches, body aches, brain fog, dizziness, shortness of breath, blurry vision, back aches and fatigue so bad I could barely get up and go to work. I thought I had Covid so I went for a test and it was negative...so that's great, I've just got the flu then....but it never went away...for over 3 months. My family dr sent me in May for every blood test, back x-rays, ultrasounds on my abdomen and everything was perfect...I was healthy as a horse she said, except I had a high white blood count in my urine. She said I had a bladder infection. I told her I have no symptoms of that and reminded her of all the other symptoms I do have. There is something really wrong with me. I feel horrible everyday!
My husband asked me one day, when I was having a meltdown, what does it feel like, what is your worse symptom!
I said all of it..it feels like I'm on treatment again. Bam...I wondered if that's what it is? When on my last visit to my dr, I asked if it could have something to do with my treatment of interpheron-ribivirin 10 yrs ago....it is an antiviral treatment, Covid is a virus and they still to this day do not know the reprocussions or long term effects of the Interpheron-ribivirin concoction on a human being. She had no idea but said it very well could be possible and after speaking to 3 pharmacists, they all had the same answer. It definitely could be from the vaccine and your prior treatment. Your body thinks it's being attacked again and the antiviral could be still kicking around...they didn't know... As they have never had any reports on any trials or outcomes or side effects from the Interpheron-ribivirin and the vaccine. So here I am, just hoping someone else out there knows what I am going through and they have had the same type of problems post vaccine. I sometimes do think I am crazy and I do cry a lot because others have no idea how devastating this has been. I am not getting the second shot until I have some type of answers. I don't go out in public much anyway, just to get groceries etc, and always wearing a mask in public. I am self employed as a bookkeeper so can work from home for the most part and am from a small town in Ontario Canada. So if you have had similar side effects or know of someone else, please get in touch with me. It would be good to know I am not alone. Thanks! Stay well.

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Replies to "I recently posted on another forum but had no responses except for 1 person that told..."

I understand. 10 years after treatment. I started to wake up the morning feeling like I had the flu. The first couple of times I thought it was a 24 hour bug. Sometimes it would last a couple of hours and some times a couple of days or weeks. Then it hit me. It was the same symptoms I had when on the drug combo. I get what I call flare ups. I'm fine for a couple of weeks maybe a couple of months. Then I get slammed with all the symptons again. As a result of the combo I have lupus, brain fog, total alipecia and to many symptons to list. I have taken both shots. I had the Moderna vacine and did well. You are not alone! No one knows how this drug combo effects us later in life. Lots of luck. We are here for you.

I understand your pain and I’m sending you good vibes for what that’s worth! You are not alone there were so many of us. I came on here looking for answers on how the Covid vaccine might affect my post interferon syndrome. I don’t even remember the exact date anymore, ( 12 to 15 years ago) I did two ribavirin interferon treatment rounds back to back. A total of a year and a half on treatment because The hepatitis came back quickly and I was in stage four liver disease.I had a wonderful happy life with a partner and a job before the treatment. I am now alone, on disability and rarely leave the house. I have constant horrible pain especially in my hands and feet. Also joint and back pain. Sometimes it hurts just when somebody touches my body. Severe depression and anxiety, weakness, fatigue and no desire to do anything except sleep. When I wake up I’m already thinking about how long it is until I can go back to sleep. Hair loss, rashes and I’m probably forgetting stuff because my memory is shot. I want to get the vaccine but I am terrified of making symptoms worse or adding new ones. Please let me know if you find out any other information. Your story is exactly what I’m afraid of.

I did forget to include some of my issues from the treatment that I am concerned may worsen. Swelling of feet and hands,very severe sweating, insomnia which doesn’t happen often but when it does I usually go three nights without sleep-which is pure hell. Vision problems including cataract surgery at age 49. And the dropsies, which I didn’t even relate to this until I read your story.

You are not alone. I’m not at all sold on the idea that this vaccine is appropriate for everyone. Possibly not appropriate for anyone. The side effects are not rare as they would have you to believe. I am seeking information on whether the first dose of the vaccine could be out of your system so that your body can, once again, reset itself. Please stay as healthy as you can, get fresh air and sunshine and lots of water. I am so sorry this happened to you. Again, you are not alone. Covid can be deadly. But covid can and IS being treated without the vaccine. While I’m grateful that a vaccine was developed, I’m not convinced it was necessary for our health. And I can think of a few billion reasons why… https://www.nasdaq.com/articles/is-pfizer-stock-set-to-see-higher-levels-post-q3-results-2021-11-03