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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@kimas

I'm so sorry to hear this. I'm going through similar things now. I'm having my EMG on both legs in a few weeks. How painful was the test and how long did it take? what part of your body was tested to get those results? I'm nervous about both the pain and the outcome. I'm also having and MRI on my cervical spine for sudden neuropathy in my head. This is just unreal. So much pain. Sleep is impossible. Any small issue I had before, as well as big issues, are screaming on overdrive now. Did you report? What did they say? Sorry for the questions. I hope you get relief soon!

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Replies to "I'm so sorry to hear this. I'm going through similar things now. I'm having my EMG..."

@kimas, I’m sorry to report that EMG was very uncomfortable for me. I’m not sure if my state of high anxiety may have made it worse. It’s the ultimate irony when a physician is telling you to relax while he is sticking needles into your nerves. However from what I’ve read, everyone does not find it to be as bad as I did. Hopefully you’ll be one of those! They tested upper and lower extremities on both sides and several places around my spine, to the best of my memory. Was trying to block it all out. I, too, have run the gamut of testing. Have had 2 MRI’s which show many degenerative changes in both my lumbar and cervical spine. None of these should have caused my symptoms to start up overnight, however. Currently, I have good days where things are on a very low simmer - just occasional burning or other mild sensations, and not much twitching. And then there are days like yesterday, when it feels like some kind of storm is taking place in my body. It has caused me no end of emotional distress. I now have severe health anxiety - something I never had before. People who say the risks of the vaccine are much worse than any possible side effects - maybe they are right, but they just don’t know what it’s like to have their lives changed overnight. I am not anti-vaccine. On the contrary, I might even get a booster if needed. All this happened to me after the first dose. My neuro advised me that “reactions like this” (whatever that means) are so very rare and quite unlikely to happen again. So I got the 2nd dose and thankfully there was no worsening. As for reporting, I have not yet, but fully intend to very soon. My reason for holding off has mainly been to get consensus from the docs. I wish you the best with your testing and search for answers.

I’ve had 2 EMG’s. One was very painful and the other not. The doctor I saw where I had no pain said they shouldn’t be painful and if I feel pain tell him and he’ll stop immediately and that he was there to serve me. How often does that happen? So I think it depends on the doctor administering. The good doc said he could always find a different way to get the info if one particular way was too painful.

I had a MRI of the Lumbar Spine and a Nerve Study test done yesterday. I don't know what the outcome is yet since no one called me. The Nerve Study test was not painful for me, but I have a high tolerance. They kept asking if everything was ok. Very professional. I have had this done before. To me, I don't feel the pain was bad. It was like using a TENS unit but a higher frequency.