Welcome @kgresh11 to Mayo Connect. We’re all patients or caregivers of patients who share information and resources about our health conditions…it sounds like EOA is a very difficult problem to deal with. I’m not really familiar with EOA; i have an autoimmune disease. I’m going to ask @sueinmn if she can join the conversation.
This link may have some good information for you.

Have you been referred to a large medical center or a university teaching hospital? You might want to try going to one as they have the most up-to-date information and treatment.
Will you keep e informed of what you learn?

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