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Chronic Myeloid Leukemia (CML)

Blood Cancers & Disorders | Last Active: Aug 10, 2023 | Replies (33)

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@living

Couple updates since my last post. After meeting with my general physician in person it turns out that the camera does add 10lbs. I do not have an edema issue currently, too my video appointments in the last year or so.
After six months of weight loss with regular exercise and help of a prescription of phentermine I’m feeling ok. I have noticed more afternoon fatigue again after finishing the phentermine.
As far as lab work I am also having a major molecular response with 100mg dasanitib daily. Something my OC mentioned during my last appointment was a possible option to reduce the daily dose to mg. There is a recent study that was conducted on 100mg dose reduction to 50mg that looks promising. The goal would be to maintain the molecular response and hopefully reduce the side effects. My appointment is coming up later this month and am looking forward to discussing this option more in-depth with my OC. It does make me nervous changing something that works if I can tolerate the side effects.
I am also curious if phentermine maybe an option to help with the fatigue long term.

Overall I’m very grateful to be able to have option to consider as this isn’t always the case for some.

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Replies to "Couple updates since my last post. After meeting with my general physician in person it turns..."

Living, this is sounding overall positive. I appreciate getting the update and look forward to hearing what you learn at your appointment later this month.