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Chronic Myeloid Leukemia (CML)

Blood Cancers & Disorders | Last Active: Aug 10, 2023 | Replies (33)

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@anglis

Hi. I was diagnosed with CML in Jan. 1995. I was 20 years old. I'm 47 now. Currently taking Dasatanib, 100mgs daily. I'm in what the Dr calls a 'major molecular response' and hoping (fingers crossed) that I might be lucky enough to come off the medication to see if it cured the cancer. However, saying that. Being on chemotherapy for nearly 25 years has taken its toll on my organs. I'm thankful to still be alive and kicking. Especially after the initial 1-3 years left to live prognosis. 💖

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Replies to "Hi. I was diagnosed with CML in Jan. 1995. I was 20 years old. I'm 47..."

Hi @anglis. Welcome to Mayo Clinic Connect. I think you’ve already discovered in your very short time with the Connect community that we’re a welcoming place to share our stories and life experiences to help each other. I saw your posts in the Men’s Health and you’re truly a positive and inspirational gift to members facing intimate issues with your frank discussions.
Well, aren’t you just a breath of fresh air! You and your husband sound like amazing people; caring, forgiving, understanding and compassionate. I noticed you apologized for being chatty! Nope!! Don’t ever feel that way. We’re all just sitting around the kitchen table with our collective cups of tea, coffee…and having a gab-fest. I recollect times when I was a child with my mom, aunties and grandmothers gathered at the table in their Coffee Clutches. I learned a lot by eaves dropping as I’m sure they had no idea little ears were hiding around the corner. LOL Here, we can all learn with our open dialog!

I’m picking up in the Blood Cancer group. I’m an AML survivor and to hear your story of CML being in remission and you might get off the meds is just over the moon fabulous! What an inspiration your news is to anyone with a diagnosis of CML.

What are the side effects from all your chemo over the years?