Has anyone tried Scrambler Therapy for neuropathy or for pain?
I have read about this device and I’m hoping someone can attest to its effectiveness for idiopathic neuropathy. I've read success stories and information online. Apparently insurance does not cover treatments, to the tune of $250 for the customary recommended 10 consecutive weekdays.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Where can I find aqua roll therapy? Thank you.
I don’t know where you live. I live in West Michigan. I would google drs in your area who use an aqua roll. I got the treatment thru a podiatrist.
Thank you!
Hello. I'm a long time follower of these discussions. My husband was diagnosed with idiopathic peripheral neuropathy 4 yrs ago. Saw several neurologists, podiatrists, orthopaedic drs. Was told his symptoms didn't present as simply peripheral neuropathy since his pain was not worst at night. He walks several miles most days and doesn't have diabetes. He suffers from painful burning and itchy feet (mostly toes) and tight calves. Has been getting acupuncture for a couple of years which helped him lower his medications dosage. Currently taking 900mg Gaba, 5mg Doxipene and Tramadol when he just can't handle it anymore. He takes multiple supplements and uses the Penetrex cream that I read Hank's wife had some success with. He's also tried CBDs and THC/CBDs but not much help.
A local podiatrist offers a treatment called Sanexas however I'm wary as I'm unable to find any clinical studies online even though it's covered by insurance. My primary care doctor is also involved with running the clinic and has said it can't hurt to try it and medicare pays for it. Has anyone ever tried this?
I've read about the scrambler therapy and I'm wondering if that treatment is currently available and if anyone has experienced it?
Hi @greenacres Welcome to Mayo Clinic Connect. Painful burning and itching is just awful on a daily basis. You will see I moved your post to a discussion where many members are talking about this. I did this so that you can connect with others who are going through similar circumstances with the scrambler therapy. There is also a discussion that involves Sanexas which you mentioned here that I thought you would be interested in. https://connect.mayoclinic.org/discussion/sanexas/
Other than the acupuncture, as he tried anything else?
Hi @amandaburnett Thank you for the welcome as well as thank you to all the members of this support group who have shared their stories and are so adaptive. Other than the acupuncture he is taking Gaba and Doxipene and multiple supplements. He's tried physical therapy, reflexology, tens, many different types of shoes, different styles of acupuncture, nerve block injection in lumbar spine, Capsaicin cream, lidocaine and CBD cream. (and Penetrex which he still uses because I read about it on @jesfactsmon post.
I went to a clinic that said I would get 50 percent improvement so I signed up for 24 treatments which involves 5 shots in ea foot followed by electric tens for 15 min. By the way they did a biopsy of my left leg before I started and at the end would do another biopsy and compare.
Half way through I complained that it was getting worse. He said "that's the nerves connecting" so I complained the last 12. Now I can't walk a city block without burning and pain.
The final blow was I called to see about the last biopsy and the dr said I didn't need one since the first biopsy showed I had normal connections. The last neurologist I went to said "I really don't think you have neuropathy I think you just have hot feet. I'm now on 600 mg of Gabapentin with no relief. I hope this helps with your decision.
By the way after seeing the medicare bill which was 1000 dollars per session I more understand???
Hi, i am new to this blog and read your enlightening post. I have been dealing with what has been diagnosed as idiopathic sensory nerve neuropathy for about 6 years, which started at the bottom of my feet and has gradually spread up my legs, my arms, back and neck. I found that the 3-4 neurologists that i went to offered nothing in the way of cure, but only tested and prescribed. I stopped seeing them. I had not heard of the two treatments you mentioned, scrambler therapy and sanexas, but i am definitely going to check them out. Thanks! I have gradually increased my gabapentin from 100 mg three times a day to 300 mg three times a day, like your husband, and it does give some relief. I use an over the counter cream, Topricin Fibro Cream, which helps some and is worth a try. I guess that his issue is not the same as mine, but close. Neuropathies seem to come in many different forms. I'll look forward to communicating with you if that's ok.
Hi @lincolned, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. There really is no cure so to speak for neuropathy but there are a lot of treatments to provide relief from the symptoms. It's good that you are investigating and learning as much as you can about treatment options and what other members have shared with their experiences. There is another discussion you might find helpful -- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
If you are looking for more information on neuropathy, here are 2 of my favorite sites for research and learning.
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
I think most of us have wasted money on different treatments that provided little or no relief so it's good to do your research on whatever you are looking at. You might find the following discussion and sites helpful for evaluating different neuropathy treatments being advertised.
Quazar's guidance about avoiding scams and snake oil cures
-- https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments/
FDA's Health Fraud Page
-- https://www.fda.gov/ForConsumers/ProtectYourself/HealthFraud/ucm539101.htm
NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.
-- https://nccih.nih.gov/health/decisions
Do you mind sharing what you were searching for when you found Connect?
Hi, I’m sure your response and Connect will be very helpful, both physically and mentally. It’s great to have “an ear” thanks so much!