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POTS patients- vaccine or no vaccine?

Heart Rhythm Conditions | Last Active: Sep 24, 2022 | Replies (25)
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@alih

Hi Sue, to be clear, I am not worried about developing POTS as a reaction to either the vaccine or COVID; I already have it. I am worried about NON POTS reactions in POTS patients.

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Replies to "Hi Sue, to be clear, I am not worried about developing POTS as a reaction to..."
Sue, Volunteer Mentor | @sueinmn | Aug 8, 2021

Sorry, I misunderstood your concern. I will look further to see if there is a way to tease this out of the VAERS data.
Sue

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Sue, Volunteer Mentor | @sueinmn | Aug 9, 2021

Hi Ali -
I looked and I looked - and I failed. There is no way to tease that information out of the VAERS data. People could self-report pre-existing conditions when getting the vaccine or making a VAERS report, but it is not required in VAERS. I am not sure where to direct you next, although your cardiologist might have access to current information in their medical journals.
Sue

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Sue, Volunteer Mentor | @sueinmn | Aug 11, 2021

Ali - I was teaching someone else to use the VAERS reports, and I found the information you were seeking. Accuracy depends on how thorough people reporting a reaction were in reporting their history and current medical conditions, but here is what I found:
Current POTS reported: 66 VAERS Events, 69 to ER, 33 Hospitalized, 4 deaths.
History of POTS: 610 VAERS Events, 148 to ER, 29 Hospitalized. No deaths. Only one reported recurrence of POTS symptoms.
The range of symptoms reported looked much like the usual ones in VAERS. There may be overlap - eg, went to ER, then admitted to hospital.

I hope this helps you with your decision-making

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