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@greenacres

Hello. I'm a long time follower of these discussions. My husband was diagnosed with idiopathic peripheral neuropathy 4 yrs ago. Saw several neurologists, podiatrists, orthopaedic drs. Was told his symptoms didn't present as simply peripheral neuropathy since his pain was not worst at night. He walks several miles most days and doesn't have diabetes. He suffers from painful burning and itchy feet (mostly toes) and tight calves. Has been getting acupuncture for a couple of years which helped him lower his medications dosage. Currently taking 900mg Gaba, 5mg Doxipene and Tramadol when he just can't handle it anymore. He takes multiple supplements and uses the Penetrex cream that I read Hank's wife had some success with. He's also tried CBDs and THC/CBDs but not much help.
A local podiatrist offers a treatment called Sanexas however I'm wary as I'm unable to find any clinical studies online even though it's covered by insurance. My primary care doctor is also involved with running the clinic and has said it can't hurt to try it and medicare pays for it. Has anyone ever tried this?
I've read about the scrambler therapy and I'm wondering if that treatment is currently available and if anyone has experienced it?

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Replies to "Hello. I'm a long time follower of these discussions. My husband was diagnosed with idiopathic peripheral..."

Hi @greenacres Welcome to Mayo Clinic Connect. Painful burning and itching is just awful on a daily basis. You will see I moved your post to a discussion where many members are talking about this. I did this so that you can connect with others who are going through similar circumstances with the scrambler therapy. There is also a discussion that involves Sanexas which you mentioned here that I thought you would be interested in. https://connect.mayoclinic.org/discussion/sanexas/

Other than the acupuncture, as he tried anything else?

I went to a clinic that said I would get 50 percent improvement so I signed up for 24 treatments which involves 5 shots in ea foot followed by electric tens for 15 min. By the way they did a biopsy of my left leg before I started and at the end would do another biopsy and compare.
Half way through I complained that it was getting worse. He said "that's the nerves connecting" so I complained the last 12. Now I can't walk a city block without burning and pain.
The final blow was I called to see about the last biopsy and the dr said I didn't need one since the first biopsy showed I had normal connections. The last neurologist I went to said "I really don't think you have neuropathy I think you just have hot feet. I'm now on 600 mg of Gabapentin with no relief. I hope this helps with your decision.
By the way after seeing the medicare bill which was 1000 dollars per session I more understand???

Hi, i am new to this blog and read your enlightening post. I have been dealing with what has been diagnosed as idiopathic sensory nerve neuropathy for about 6 years, which started at the bottom of my feet and has gradually spread up my legs, my arms, back and neck. I found that the 3-4 neurologists that i went to offered nothing in the way of cure, but only tested and prescribed. I stopped seeing them. I had not heard of the two treatments you mentioned, scrambler therapy and sanexas, but i am definitely going to check them out. Thanks! I have gradually increased my gabapentin from 100 mg three times a day to 300 mg three times a day, like your husband, and it does give some relief. I use an over the counter cream, Topricin Fibro Cream, which helps some and is worth a try. I guess that his issue is not the same as mine, but close. Neuropathies seem to come in many different forms. I'll look forward to communicating with you if that's ok.