← Return to I was recently diagnosed with LBD with Parkinsonism: Any advice?

Discussion
Comment receiving replies
@larryh123

Great advice!!! Make sure that they know about all of the health issues. I was getting ready to have retinal re-attachment surgery. Dont take for granted they have all of the info. I had an experience where the info about LBD nd Parkinsonism or Muscular Dystrophy wasn’t in the anastelogists chart - I think those were important pieces of info. He was glad we told him as it made a difference on how they did some things.

You are so right about places not being ready or at least trained on how to handle us.
They pretty much let my wife come and deal with the anastesia aftermath if there is any. At least they listen and will follow what she says to help.

Peace
Larry H

Jump to this post


Replies to "Great advice!!! Make sure that they know about all of the health issues. I was getting..."

@larry123 The teamwork a patient and caregiver need to have is hard-won and constantly changing. My hat is off to those who can successfully navigate the struggles and keep some form of humor through it all.
Ginger