@happy3bhear, @lindes, @daphne52 and all
In 2019, after again being told I had MS but with no treatment and no further help, I called the Mayo Jax main number and asked for an appointment. I think Amanda @amandajro and Colleen Young @colleenyoung can give you direct numbers and advise you on these issues. They are Connect and Mayo experts with all the answers.

Most of us are regular patients like me. Many whom I've met on these groups have helped me immensely with understanding the illnesses through the interesting variety of groups. I've actually made 'friends' online whom I'll never meet but feel like we can share anything. What a marvelous and important part of healing to have these folks ready and available and wanting to share their experiences and suggestions. This has truly saved my emotional and mental health! I'm very alone and have so enjoyed finding these folks. Another Mayo gift! I'm not alone any longer which has made an enormous difference in my attitude toward life, living today and dealing with tomorrow as it arrives.

I hope you get your appt soon with the perfect doctor to help you where you are now. You can see I hope the benefits of getting to a system such as Mayo. I've had these experiences with Mayo and ended up probably finding diagnoses in other areas that will save or extend my life and definitely have already improved my quality of life.
Blessings to you. May your road be filled with light and healing.
elizabeth