← Return to I was recently diagnosed with LBD with Parkinsonism: Any advice?

Discussion

I was recently diagnosed with LBD with Parkinsonism: Any advice?

Parkinson's Disease | Last Active: Jun 5 8:34am | Replies (83)
Comment receiving replies
@raebaby

My husband's doctor was cruel. He actually made me cry with anger and compassion for my husband who was so helpless. The doctor said he couldn't help him and no one else would want to deal with him either. He turned out to be wrong. The motion specialist knew right away what to do to help him. He was experiencing "wearing off" and he was given proper medication for it. As an aside, another patient of his in our support group found out he was playing in a band at a local bar and she said she'd like to go by and bomb the bar!

Jump to this post

Replies to "My husband's doctor was cruel. He actually made me cry with anger and compassion for my..."
Larry | @larryh123 | Aug 8, 2021

We have a beautiful back yard with a pond that is only woods on the other side. We often get ducks. Some docs are like ducks - quacks!!! They missed compassion and bedside manor the day they taught in med school.
I’ve said it before - a doc that says he cant help nor anyone else can help has given up.

Thanks for your willingness to share with caregivers and us patients. We can all learn from each other.

Was it your husband that played in the band?
Just curious. I am a drummer. Try to play a little - but it i a challenge.

Peace
Larry H

VIEW AND REPLY