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I was recently diagnosed with LBD with Parkinsonism: Any advice?
Parkinson's Disease | Last Active: Jun 5 8:34am | Replies (83)Comment receiving replies
You are so right. Many folks will go to a dr and then dont question them. There is always room for a 2nd opinion OR an informed opinion.
FIGHT FIGHT FIGHT
Patients - fight for yourself
Caregivers - fight for us
We like to watch medical mystery shows. My wife thinks i would be good for an episode or 2 🙂
It always irks me when a dr says I dont know, send you home to get worse. A doc that tells a patient i dont know and leaves it at that has given up.
That is a bad doc to have.
For every bad doc there are several other good ones. Finding one that understands and treats your illness, one that is a partner in your care - that is a good one.
I have found that a good starting point is lbda.org
Also - I haven’t used this as I have been a Mayo patient from the beginnings of problems - but it might give some ideas of docs.
https://lewybodyresourcecenter.org/doctors-other-states-countries/
Take a few minutes to explore the above site. Lots of good info. Start from the home page and check all of the sections. There are a lot of hidden jams in the info. T
Peace
Larry H
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My husband's doctor was cruel. He actually made me cry with anger and compassion for my husband who was so helpless. The doctor said he couldn't help him and no one else would want to deal with him either. He turned out to be wrong. The motion specialist knew right away what to do to help him. He was experiencing "wearing off" and he was given proper medication for it. As an aside, another patient of his in our support group found out he was playing in a band at a local bar and she said she'd like to go by and bomb the bar!