Connect
← Return to I was recently diagnosed with LBD with Parkinsonism: Any advice?
Discussion
I was recently diagnosed with LBD with Parkinsonism: Any advice?
Parkinson's Disease | Last Active: Jun 5, 2024 | Replies (83)Comment receiving replies
Another tip. If your Parkinson's loved one faces surgery, be sure they their dose of Rytary, or what ever else they take ,to balance out the awful symptoms, before the surgery and to prepare that they might wake up in a totally off- the -wall state. I had to calm him down as he was coming out of the anesthesia (and the recovery room nurses seemed like they had never encountered something like it before.) Then we had to wait for more Rytary to come from the pharmacy which seemed to take forever.
Replies to "Another tip. If your Parkinson's loved one faces surgery, be sure they their dose of Rytary,..."
Connect
Great advice!!! Make sure that they know about all of the health issues. I was getting ready to have retinal re-attachment surgery. Dont take for granted they have all of the info. I had an experience where the info about LBD nd Parkinsonism or Muscular Dystrophy wasn’t in the anastelogists chart - I think those were important pieces of info. He was glad we told him as it made a difference on how they did some things.
You are so right about places not being ready or at least trained on how to handle us.
They pretty much let my wife come and deal with the anastesia aftermath if there is any. At least they listen and will follow what she says to help.
Peace
Larry H