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DiscussionI was recently diagnosed with LBD with Parkinsonism: Any advice?
Parkinson's Disease | Last Active: Jun 5 8:34am | Replies (83)Comment receiving replies
Replies to "How I handled sun downing.. My husband started "escaping at night. The doctor suggested we lock..."
It’s great how you were able to think through the situation and come up with a way to help with the adjustment of melatonin times.
This is the kind of thing that we - patients and caregivers have to understand. The docs look at this from a clinical aspect and cant take into account every angle. We have to sometimes prod them fo answers.
They dont understand what it is like from “in here” (my slang for what is going on in my mind with LBD).
We make a log of things that we notice cropping up to try and give the doc as much info as possible. You might see a pattern to ask about he might see somethings that spark his interest.
Thanks so much for your posts that give all of us (patients and caregivers) great info.
Peace
Larry H