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@raebaby

How I handled sun downing.. My husband started "escaping at night. The doctor suggested we lock him in his room, but he climbed out the window. Once, we were totally puzzled how he got out, and learned that the cat who could operate levered doors did it. You have to feel some humor in these awful situations.

The last straw was when he left in the middle of the night (we are on 22 wooded acres) and I found him when I woke up at 9am laying in a field, face down with hypothermia. An ambulance took him to the emergency room and he was back home later that day.
All on my own, I reasoned that if his body clock fouled him up at dusk, I would give him 10 mg. of melatonin at 4pm. Then another 10 mg of melatonin around 9-10 pm. It ended the sun downing. The only time there was ever a foul up was when my son was watching him and didn't give him his first dose until 6pm.

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Replies to "How I handled sun downing.. My husband started "escaping at night. The doctor suggested we lock..."

It’s great how you were able to think through the situation and come up with a way to help with the adjustment of melatonin times.
This is the kind of thing that we - patients and caregivers have to understand. The docs look at this from a clinical aspect and cant take into account every angle. We have to sometimes prod them fo answers.
They dont understand what it is like from “in here” (my slang for what is going on in my mind with LBD).
We make a log of things that we notice cropping up to try and give the doc as much info as possible. You might see a pattern to ask about he might see somethings that spark his interest.
Thanks so much for your posts that give all of us (patients and caregivers) great info.

Peace
Larry H