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DiscussionI was recently diagnosed with LBD with Parkinsonism: Any advice?
Parkinson's Disease | Last Active: Jun 5 8:34am | Replies (83)Comment receiving replies
Replies to "For hallucinations and psychosis, w finally obtained medication from his motion specialist. His regular neurologist was..."
You are so right. Many folks will go to a dr and then dont question them. There is always room for a 2nd opinion OR an informed opinion.
FIGHT FIGHT FIGHT
Patients - fight for yourself
Caregivers - fight for us
We like to watch medical mystery shows. My wife thinks i would be good for an episode or 2 🙂
It always irks me when a dr says I dont know, send you home to get worse. A doc that tells a patient i dont know and leaves it at that has given up.
That is a bad doc to have.
For every bad doc there are several other good ones. Finding one that understands and treats your illness, one that is a partner in your care - that is a good one.
I have found that a good starting point is lbda.org
Also - I haven’t used this as I have been a Mayo patient from the beginnings of problems - but it might give some ideas of docs.
https://lewybodyresourcecenter.org/doctors-other-states-countries/
Take a few minutes to explore the above site. Lots of good info. Start from the home page and check all of the sections. There are a lot of hidden jams in the info. T
Peace
Larry H