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Autoimmune illness and small fiber neuropathy

Neuropathy | Last Active: May 28 9:29am | Replies (51)
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@bardhyl

I have systemic lupus that is active since my bout with Covid-19. Lupus was under control for 45 years until Covid hit in January 2020. My Covid is long haul. I still cannot smell anything, or taste some things I loved to eat. I have not been diagnosed with neuropathy but my feet are numb. I can feel with them and have no pain but when I take off my shoes the soles feel like I still have shoes on. When I first got lupus my feet became painfully arthritic and swolllen. It took several years to comfortably walk. At this time nothing hurts but my feet are swollen. I take care of them as best I can and see a reflexologist weekly. . I'm starting to use Arnica tablets to see if that heips,

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Replies to "I have systemic lupus that is active since my bout with Covid-19. Lupus was under control..."
John, Volunteer Mentor | @johnbishop | Aug 6, 2021

Hi @bardhyl, Welcome to Connect. I also have swelling in my legs and feet during the day but I think it's related to my lymphedema diagnosis and not my small fiber neuropathy. I do wear compression socks which I hate but it does keep the swelling under control. You mentioned your Lupus diagnosis was under control for 45 years before you had COVID. Here's some information you may already know but thought you might find it helpful - What Causes Lupus-Related Swelling And How Is It Treated?: https://lupus.net/symptoms/swelling

Do you think your feet swelling could be related to your Lupus?

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Becky, Volunteer Mentor | @becsbuddy | Aug 6, 2021

Hello @bardhyl Welcome to Connect. This is a group of patients and caregivers who share information and resources and tips to help each other thru their health journey. We’re not doctors though, so we cant diagnose or prescribe medications.
You might want to look around your area because some of the larger hospitals have started
Covid Long Haul programs.
Have you talked with your doctor about the swelling in your feet? What has he/she said?

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