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I was recently diagnosed with LBD with Parkinsonism: Any advice?
Parkinson's Disease | Last Active: Jun 5 8:34am | Replies (83)Comment receiving replies
My husband died with Parkinson's in February of 2019. We dealt with lots of problems about 3 years before he died. I found one item that helped his dementia a lot. It was a red light therapy devise called the Vielight 810. It really improved his mind and body. He was able to play chess again.
I also learned how to deal with his "sun downing", psychosis and hallucinations. If I can be of help to anyone. I know how VERY hard it was being a caregiver. Sometimes I thought it would cause me to have a stroke. We were married for 58 years.
Replies to "My husband died with Parkinson's in February of 2019. We dealt with lots of problems about..."
Hello:
Thanks for sharing your insight on the red light therapy. I’m going to do some research to see if it might help me.
I am a LBD with Parkinsonism patient always looking for great ideas to help us out.
Appreciate you sharing your story. I know as a patient, we truly appreciate everything you do for us.
We appreciate your sacrifice and - well - putting up with us.
Your insight will be helpful for all of us - patients and caregivers.
Peace
Larry H
For anyone wishing to review research about photobiomodulation, here are some relevant links. The studies to date have been done with small sample sizes.
- Significant Improvement in Cognition in Mild to Moderately Severe Dementia Cases Treated with Transcranial Plus Intranasal Photobiomodulation: Case Series Report 2017 https://www.liebertpub.com/doi/full/10.1089/pho.2016.4227
- Improvements in clinical signs of Parkinson’s disease using photobiomodulation: A prospective proof-of-concept study 2021 https://www.vielight.com/wp-content/uploads/2021/06/Improvements-in-clinical-signs-of-Parkinsons-using-Photobiomodulation.pdf
- https://www.vielight.com/research
Hi Raebaby, I add my welcome. What are some tips that you would offer to others about sun-downing and hallucinations?
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@raebaby Welcome to Mayo Connect. All the members here are either patients or caregivers who share information, resources, and helpful tips. Your presence in this group will be so valuable! @larryh123 who started this group, also has LBD. I know he’ll be glad to welcome you.
How have you been doing since your husband’s death?