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Crohn's Disease isn't on the ease: What treatments work?
Digestive Health | Last Active: May 3, 2023 | Replies (39)Comment receiving replies
@mary0thomas my heart breaks for you .
I too have a long post on here with topic ( Chronic Digestive Disorders). I know the frustration and the agony of trying to get just ONE Dr. to give you something that will relieve symptoms ( even if only for a day here and there ). I’ve been down this rabbit hole 🕳 for 7.5 long long years . Seen over 5 Gastro Dr’s from NC to FLA , where I live now .
After 5 months I finally have a televisit appt w/ Gastro at Mayo Clinic Jacksonville on Sept 7 th . I heard they will want me up there to RE-DO many of the tests I’ve had previously ( which is a lot )!! I’m desperate now as I’m almost 60 and lost 7.5 years of my life already. Chronic is the worst . I wouldn’t wish it on my worst enemy.
I’m praying 🙏 you find the right Dr. too who really cares and wants to solve your health issues. Have you been to Mayo Clinic Jacksonville or any other one yet ?
God Bless you & me and all of us suffering w/ these issues . Rosemary
Replies to "@mary0thomas my heart breaks for you . I too have a long post on here with..."
@rozy288 even with your comments of frustration and agony, i still see a sense of hope in your posting. Thank you. I’m so happy that you’re going to Mayo-Jacksonville next month. Going thru all the tests again wont be fun but it will be worth it for you. Maybe some answers and help!! Will you please let me know what you learn?
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No, I’m in Boston and I do feel I have the best. I did have at least 9 tests,some not so comfortable. My stomach and small intestines working well so my surgeon says I’ll do fine as well as my pcp. They say I will not suffer constipation,highly unlikely and if so the bag would happen. I’ve tried every prescription drug and all OTC drugs too. I’m on a schedule not to go more than 6 days then start laxatives. Their are times I’m so constipated they order a colon cleanse like a colonoscopy. I’ve lost weight, was social but not know and honestly always either feel ill or have diarrhea. What a life. I’m afraid of the surgery. I’ve had many but this one really scares me. I’ve heard of maybe getting an ng tube, I can’t even think of it. I wish I could talk with someone about actual procedure.I found this site and praying I’ll get a reply. The surgeon is also seeing if I can join a support group prior. I’m honestly still on the fence. Many thanks for your input. Wish you the best. Joanne