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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
I am a 73-year-old female with a recent diagnosis of MAC along with a history of 34 years of severe rheumatoid arthritis. I also have osteoporosis, osteoarthritis, GERD and a neuromuscular disease called CMT (Charcot Marie Tooth Disease). I also live with scoliosis which can be one of the symptoms of CMT and for which I had corrective surgery 11 years ago. My MAC diagnosis came about a month ago. I am not on treatment yet except for an inhaler. I have been reading many of the messages posted here and am learning quite a bit. One thing I have not noticed is mention of loss of voice or raspy voice. My voice has gotten raspy in the past when I have had sinus infections. I do not believe I have sinus trouble presently but my voice has been getting worse since the beginning of this year. I am trying to drink extra fluids but I am beginning to worry about losing my voice totally. I'm looking for suggestions. I am going to be scheduled for a bronchoscopy sometimes soon. I am a former LPN who worked on a postop surgical floor, in nursing homes and for many years as an occupational health nurse.
Replies to "I am a 73-year-old female with a recent diagnosis of MAC along with a history of..."
Hi Katherine, thanks for that. feel better going in pool, even if the germies are there, love the muscles. Going to ask for aerobika in August and talk more about the bleeding, though not doing that now. That's the thing that knocks me down of course, but now I know it is part of the disease and not so scary. xo
Thank you so much Katherine for ''this great information. I just read on Terri's post that you are taking a well deserved break from everything that I have read from you.
I just wast to tell you that I will take your advice and ask my Doctor to put me on a list for a
Bronchoscopy , I really want to know what is going on in there.
Yesterday, I was trying to pack a few things while getting ready to show my property for sale
and I find that I have absolutely no energy and I can feel that there is matter in my pipes that is stuck there and won't come out.
I am truly fed up with this procrastination so I will call the secretary tomorrow Monday and insists on being scheduled for this test.
Thank you an Terri for everything,
Hugs , Andree
@mariposa Andree,
do you have help with all of this moving business? I hope you do in light of
being so low energy. I feel for you, I really do. - Terri M.
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Hi @windwalker , do you think that the tobramycin had helped you get rid of your MAC?