1. < Bladder Cancer

Bladder cancer & kidney transplant

Posted by Bob Taub @tucsonguy, Aug 2, 2021

I recently found out about my bladder cancer condition three months after my kidney transplant. Because of the transplant I can’t have radiation because it would affect the kidney so I’m going through chemo starting today and after the chemo treatments they will remove my bladder.. Anyone else out there have the same condition and how did they handle the chemo. Appreciate any advice. Thanks.

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

Bob Taub | @tucsonguy | Aug 5, 2021
In reply to @jimmy2248 "Yes I have ostomy bag. The hardest thing for me was accepting that i may shower...." + (show)
@jimmy2248

Yes I have ostomy bag.
The hardest thing for me was accepting that i may shower. I think i was concerned about getting the ostomy wet. Now I swim without hesitation.

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Thanks. Very helpful information.

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Mentor
Sue, Volunteer Mentor | @sepdvm | Oct 2, 2021

My husband is 2 years post diagnosis for high grade muscle invasive urothelial cell carcinoma. Located in a pouch off the bladder, he had a partial bladder removal, just the pouch, Chemo for months after, then on to BCG in the bladder. He tolerated Cisplatin and Gemcytobine well but the BCG did not control the tumor regrowth in the bladder. He has had 4 TURBT surgeries in the last year and a half and luckily each time the masses had not invaded the muscle of the bladder wall. He spent the last 5 months on Keytruda, but still had a tiny new bladder growth in July. He has decided to have the bladder removed and a neobladder surgery with his surgeon at Mayo, Dr, Karnes. He wants to avoid an ostomy if at all possible, and building a new bladder out of small intestine is an option. I would love to hear from anyone who knows someone who has had this surgery.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 8, 2021
In reply to @sepdvm "My husband is 2 years post diagnosis for high grade muscle invasive urothelial cell carcinoma. Located..." + (show)
@sepdvm

My husband is 2 years post diagnosis for high grade muscle invasive urothelial cell carcinoma. Located in a pouch off the bladder, he had a partial bladder removal, just the pouch, Chemo for months after, then on to BCG in the bladder. He tolerated Cisplatin and Gemcytobine well but the BCG did not control the tumor regrowth in the bladder. He has had 4 TURBT surgeries in the last year and a half and luckily each time the masses had not invaded the muscle of the bladder wall. He spent the last 5 months on Keytruda, but still had a tiny new bladder growth in July. He has decided to have the bladder removed and a neobladder surgery with his surgeon at Mayo, Dr, Karnes. He wants to avoid an ostomy if at all possible, and building a new bladder out of small intestine is an option. I would love to hear from anyone who knows someone who has had this surgery.

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Sue, you may be interested in this discussion:
- Neobladder Replacement vs. Stoma https://connect.mayoclinic.org/discussion/neo-bladder-replacement/

I think @pameladstone @kwagner @madebacco may have experiences with a neobladder to share with you.

Sue, when is surgery scheduled for?

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1 reply
Mentor
Sue, Volunteer Mentor | @sepdvm | Oct 8, 2021
In reply to @colleenyoung "Sue, you may be interested in this discussion: - Neobladder Replacement vs. Stoma https://connect.mayoclinic.org/discussion/neo-bladder-replacement/ I think..." + (show)
@colleenyoung

Sue, you may be interested in this discussion:
- Neobladder Replacement vs. Stoma https://connect.mayoclinic.org/discussion/neo-bladder-replacement/

I think @pameladstone @kwagner @madebacco may have experiences with a neobladder to share with you.

Sue, when is surgery scheduled for?

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He is scheduled with Dr. Karnes in Rochester Dec. 13. THat link was quite helpful, thank you.

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mahesh | @mahesh | Nov 5, 2021

Name: R Mahesh age 67
Hospital : Fortis , in Mumbai , India

Right Urethral carcinoma -

Present state: no problem, urine is clear. Not much effect post chemo for lymph nodes.

Need views.

Right Ureter carcinoma was detected in March 2020. Subsequently in April itself surgery of tumor was done. Biopsy revealed high grade carcinoma. Option of cystoscopy. So This was followed by 3 Checkscopy were done in a gap of every 3 months. In December 2020 pet scan revealed metastasis in para aortic lymph nodes. ButNo cancer in original site. At this point chemo treatment started and took 5 cycles of chemo. Subsequently in April 2021 again pet scan was done. And it was all clear both original ureter and lymph nodes. In August 2021 sonography of KUB was done and that was also clear. Our Oncologist was satisfied with report and asked us to come only in January 2022. However we happened to meet the urologist who did the original surgery and he insisted that pet does not show inside of bladder and the case being of high grade cancer we should do checkscopy. We did the Checkscopy the report of which has also been sent you subsequently . In his report he has now suggested removal of kidney ureter and part of bladder. So our query is when there is no cancer in the body should go for removal of the organs now. What would be your suggestions for future treatment..

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Nov 8, 2021
In reply to @mahesh "Name: R Mahesh age 67 Hospital : Fortis , in Mumbai , India Right Urethral carcinoma..." + (show)
@mahesh

Name: R Mahesh age 67
Hospital : Fortis , in Mumbai , India

Right Urethral carcinoma -

Present state: no problem, urine is clear. Not much effect post chemo for lymph nodes.

Need views.

Right Ureter carcinoma was detected in March 2020. Subsequently in April itself surgery of tumor was done. Biopsy revealed high grade carcinoma. Option of cystoscopy. So This was followed by 3 Checkscopy were done in a gap of every 3 months. In December 2020 pet scan revealed metastasis in para aortic lymph nodes. ButNo cancer in original site. At this point chemo treatment started and took 5 cycles of chemo. Subsequently in April 2021 again pet scan was done. And it was all clear both original ureter and lymph nodes. In August 2021 sonography of KUB was done and that was also clear. Our Oncologist was satisfied with report and asked us to come only in January 2022. However we happened to meet the urologist who did the original surgery and he insisted that pet does not show inside of bladder and the case being of high grade cancer we should do checkscopy. We did the Checkscopy the report of which has also been sent you subsequently . In his report he has now suggested removal of kidney ureter and part of bladder. So our query is when there is no cancer in the body should go for removal of the organs now. What would be your suggestions for future treatment..

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Hi Mahesh, you ask questions that only medical professionals who can review the medical records could answer. If you would like to seek the opinion of Mayo Clinic experts, please see the contact information for international patients here: http://mayocl.in/1mtmR63

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