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DiscussionWhat are the best treatment for CLL? Is CAR T cell therapy an option?
Blood Cancers & Disorders | Last Active: Oct 19 1:07pm | Replies (11)Comment receiving replies
Replies to "I was diagnosed with CLL 7 years ago at age 64 and have had semi annual..."
Hi Carl. I've been "fighting" CLL for about 5 years. Diagnosed when I'd had a constant headache for many months. Since then, I've been pursueing daily walks in the fresh air & sunshine (here in Arizona), and avoid idleness, especially in the mornings. A daily, afternoon rest, for 1 hour (always) or more if I'm sick (had a 15-day long intestinal flu, for example). A general practicioner recommended Vit. D, since a lack of it is always present in serious illnesses. I am 76, female. Mom had the same. Was doing labs & oncologist every 2-3 months, now every 6 months. I hope that you also will avoid treatment and, if we will try to eat more fresh veggies, we should do quite well!
Hi @carl50 Welcome to Mayo Clinic Connect. Members aren’t medical professionals so we can’t diagnose health problems. However, we can share our own personal experiences and insights to help find answers, give suggestions and offer encouragement.
You’re really fortunate to not need any medication for your CLL. Over the 7 years since diagnosis you’ve had blood work every 6 months and nothing has changed. That’s really great news. If I were you, I’d just keep on enjoying life as you are now. There’s no point in worrying about “what ifs”. I bet you were really concerned 7 years ago and look how far you’ve come with no change. If the blood numbers do change then there are quite a few options for treatments. But there’s no indication of that yet.
Your hematologist would be the best person to ask since he knows your case. Has he or she said anything about possible future treatments?