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New Cystic Fibrosis (CF) Diagnosis

MAC & Bronchiectasis | Last Active: May 13, 2023 | Replies (25)

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@vfparker

I am sorry to hear of the diagnosis. Can you tell me more about the digestive issues? I am 65 with bronchiectasis. In the last six months it is as though my food gets stuck and I end up violently coughing up mucus with what I last ate with it from time to time. I have referrals to Univ of MI by my doc as well as a referral to a speech and language specialist that will explore my food digestion. I am curious what your daughters digestive issues were and how they became better controlled. Thank you!!!

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Replies to "I am sorry to hear of the diagnosis. Can you tell me more about the digestive..."

She had an inability to tolerate/digest a number of foods, which is typical of CF patients, so many GI issues, but she does not have the sticky mucus in her lungs that is also typical. I believe she has been given enzymes to help, and is now able to eat a wider range of foods, and has less episodes of nausea, gas, constipation, etc. But it didn't help with her actual food allergies such as wheat, tree nuts and a few others.