Hi everyone! I had Clicking Larynx Syndrome just like you all. It first happened only for 3 swallows and went away. It came back full time a month later. I saw an ENT and was immediately pushed out of the door. He didn’t even feel the clicking with his hands. I knew this was more serious (seriously annoying) and I continued to search for an ENT that specializes in head and neck surgery. I think that is the key here. You need to find someone who has done surgeries and actually understands what is happening. The ENT I found who also worked in the cancer center and focused on surgeries relating to cancer worked with me for 5 months with physical therapy, swallow tests and steroids. No results. I threw in the towel and got a CT scan done. My thyroid cartilage was a little enlarged on one side but nothing alarming. I also had a shorter distance between my greater horn of my hyoid and superior Cornu on one side. After discussing, I opted for surgery. My ENT performed a fairly common procedure called a thyroglossal duct excision where he removed the center portion of my hyoid and then he stitched up my remaining hyoid bones to the underside of my tongue. He made sure to remove enough that when he was in surgery he could see no more apparent contact between the thyroid cartilage and hyoid. I had immediate relief directly out of surgery. I did however notice some clicking when I turn my head and what seems to be clicking in the back of my throat after some swelling went down. I spoke with my ENT and he said this may all subside since I am still healing. If not, I go back in a couple months for another CT scan.
Also, on the day of my surgery he told me another girl saw him with the same problem.
Hang in there everyone. As isolating as it feels, you aren’t alone. I’ve been silently following this thread for months while I suffered. I know how horrible this is and frustrating but there are answers and you will be better one day. My advice is to not give up on searching for someone to take you seriously. Find an ENT at an actual hospital that is a surgeon. Not a specialist at a clinic. Also, I have horrible OCD and anxiety/depression and I know that the mental component can really amplify it. IF AN ENT TELLS YOU THIS IS FROM ANXIETY OR STRESS MOVE ON. This is very real and you need someone to take you seriously. I’m hoping all of my problems dissipate but I can gladly say that horrible thud is GONE. Also, there are great articles online about surgical procedures to take care of this issue. Print those out and bring them to your ENT. I did. Have hope and don’t give up.

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