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What are the best treatment for CLL? Is CAR T cell therapy an option?

Blood Cancers & Disorders | Last Active: Oct 19 1:07pm | Replies (11)
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@rip

I am in active treatment now. Venetoclax, 200 mg daily. Allopurinol, 300 mg daily. Starting Rituximab infusions 10 Aug, every 28 days.. I am ok except very tired all of the time.
Ron

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Replies to "I am in active treatment now. Venetoclax, 200 mg daily. Allopurinol, 300 mg daily. Starting Rituximab..."
Lori, Volunteer Mentor | @loribmt | Aug 3, 2021

Hi Ron, it’s really great to hear from you again! I know the first time you were in treatment for CLL you’d had 2 treatments. They made ill and you had to stop. It sounds like your new doctor is a little more encouraging with trying some different medications to help you with the symptoms of CLL.
I’m happy to hear you’re feeling ok except for being tired. Unfortunately that can be a side effect of your disease as well as some of the treatments. Hopefully that passes and you regain some energy.

When told about the Rituximab, were you given a time for how long each infusion would take? Usually it’s administered over a couple of hours. So when you go, make sure you take some snacks, water, a book or iPad along to keep you busy! I’ve had these IV’s too and they have to drip slowly. But it’s a good anti inflammatory medication to keep symptoms down.
When did you begin this new treatment?

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