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New Cystic Fibrosis (CF) Diagnosis

MAC & Bronchiectasis | Last Active: May 13, 2023 | Replies (25)

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@sueinmn

My daughter was diagnosed as "probable CF" at age 39, after years dealing with intractable asthma which morphed into bronchiectasis. Meds were added to her already complex regimen, and her breathing is finally improved and exacerbations down to one or two a year. Not sure of her current med, but it took 2 years of adjustments to get her to this point. I can only imagine how different her life might have been if she was properly diagnosed in childhood, because she had years of digestive issues as well, most of which are now resolved. Since there is a genetic component, now I'm wondering if her sister should be tested as well...
Sue

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Replies to "My daughter was diagnosed as "probable CF" at age 39, after years dealing with intractable asthma..."

I am sorry to hear of the diagnosis. Can you tell me more about the digestive issues? I am 65 with bronchiectasis. In the last six months it is as though my food gets stuck and I end up violently coughing up mucus with what I last ate with it from time to time. I have referrals to Univ of MI by my doc as well as a referral to a speech and language specialist that will explore my food digestion. I am curious what your daughters digestive issues were and how they became better controlled. Thank you!!!

Digestive issues? Is that related to the CF?