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New Cystic Fibrosis (CF) Diagnosis

MAC & Bronchiectasis | Last Active: May 13, 2023 | Replies (25)
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@lindam272

@ckscoville I was diagnosed with CF at 65 after my bronchiectasis was getting worse. The pulmonologist ran every test in the book and finally at the end the sweat test. I have one 5T gene and one unknown so my combo is rare and therefore not eligible for any modulators. I hope the Trikafta works for you. I understand it's made a big difference for many. @lindam272

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Replies to "@ckscoville I was diagnosed with CF at 65 after my bronchiectasis was getting worse. The pulmonologist..."
ckscoville | @ckscoville | Aug 2, 2021

Thanks for the reply. I 'm gradually finding out that -- while pretty uncommon -- others have been diagnosed with CF at an advanced age. I had lung issues pretty much all through childhood and my teen years, but everything was dormant up until about 4-5 years ago.

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