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chinasmom (@chinasmom)

Good MAC Doctor Recommendations

MAC & Bronchiectasis | Last Active: Sep 25 1:48pm | Replies (68)

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@ljfoo

Greetings,
I live in the San Francisco Bay Area. I was diagnosed with bronchiectasis and MAC in February 2020. I have been diligently expectorating three times a day using a nebulizer and 10% saline solution followed by physiotherapy, i.e., percussion clapping, vibrations, and autogenic drainage while lying on a yoga mat. I’ve been doing this in the hopes of secreting enough mucus to deprive the MAC of a friendly environment for nesting in my stretched airways. I learned the physiotherapy by watching videos on the Cystic Fibrosis Foundation (CFF) website but I have no idea if I am doing it properly. The Kaiser respiratory therapist says Kaiser does not or no longer uses physiotherapy so she can’t show me if I am doing it properly. CFF can’t help someone who doesn’t have cystic fibrosis. In addition, it took me months to figure out how to cough or huff out mucus without straining my diaphragm leading to soreness and pain. And I am still figuring out how to cough and huff without straining my lower back. I therefore am in need of a respiratory therapist. Does anyone have or know of a respiratory therapist in the SF Bay Area I can consult with?
lora jo

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Replies to "Greetings, I live in the San Francisco Bay Area. I was diagnosed with bronchiectasis and MAC..."

Hi Lora Jo, welcome to the MAC group. I moved your message to this existing discussion called "Good MAC Doctor Recommendations." I did this so you can connect with others who may have recommendations for a respiratory therapist in the SF Bay Area.

You've also asked questions about using a nebulizer and getting sputum. I encourage you to review some of the existing discussions on these topics. Here are a few recent ones that will provide some information that you're looking for:
– 7% saline continues to deliver https://connect.mayoclinic.org/discussion/7-saline-continues-to-deliver/
– Sputum tests: Problems producing enough sputum https://connect.mayoclinic.org/discussion/sputum-tests/

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