Hello @klomprez and welcome to Mayo Clinic Connect. Thank you for sharing your healthcare journey. This has had to be a very exhaustive experience for you.

You will notice that I have moved your post into an existing discussion on Epstein-Barr so that you can better connect with members like @suewilliams64 and @sfdm13 who have recently shared also being diagnosed with Epstein-Barr so you can share with one another.

Have you been seen by a specialist at a teaching hospital by chance?