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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Feb 13 8:28pm | Replies (547)

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@barikury

I came upon Mayo Clinic Connect and this group while researching neuropathic pain in the pudendal area. I am so glad I found you! I was beginning to think I was the only person on the planet who has this problem! I am a 65 year old male and also have mild small cell neuropathy in my feet. Three doctors have looked at me oddly when I've described my pudendal symptoms. My neurologist, who is rather highly respected in this state, listened patiently, prescribed Tegretol and nortriptyline, and mentioned a nerve block. The PA who I see monthly for chronic back pain medication management, ordered an MRI looking for spinal involvement and plans to order more imaging if necessary to rule out a tumor, (which she thinks is unlikely). The problem began with an intermittent, slight tingling/vibration sensation which after 8 months has become much more pronounced. There is also a very dull, unpleasant ache which resembles the sensation of feeling returning to a hand or foot after it has "fallen asleep." Both the tingling/vibration and the aching come and go and can very slowly move from place to place in the pudendal region. Somtimes the pain is bad enough to keep me awake all night and it seems to be slowly getting worse. This is scary and is driving me crazy! Does anyone have any insight or suggestions? Thank you so much for listening!!

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Replies to "I came upon Mayo Clinic Connect and this group while researching neuropathic pain in the pudendal..."

Hello Bob @barikury, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. While we wait for other members to share their experiences and what has helped them, you might find the following discussions helpful:

-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

@bkruppa, @ahayes, @richman54660 and others may have some suggestions to share with you. Have you looked into any alternative treatments or therapy?