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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Feb 13 8:28pm | Replies (547)

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@johnbishop

Hi @mad, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. @jenniferhunter shared a post earlier in this discussion that talks about Myofascial Release Therapy (MFR) that is known to help PNE - https://connect.mayoclinic.org/comment/218802/

The Pudendal HOPE (Health Organization for Pudendal Education) website has a list of doctors you might find helpful here - https://www.pudendalhope.info/node/54

You mentioned that you have a Neurostimulator that helps with your other problems but not the pudendal issue. Have you found anything that helps a little to provide some relief?

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Replies to "Hi @mad, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

Really the only thing that helped me was to learn to be modest and say I can’t do that. I have gone to Myofascial Physical therapist in Arkansas and Texas that’s where I had the internal physical therapy and external therapy. She did help realize there wasn’t just that injury. She helped to get to Philadelphia because I had athletic publigia/ my abdominal muscles were torn off the pubic bone and the Doctor there helped to get surgery for the hip problems as well as having my aductor muscle released because it had drawn up so bad I couldn’t put my foot on the ground. And with all that the pudendal nerve gave me pain like I have never experienced before. I was always a very active individual, learning that that part of my life was over and quit trying to live as active as I was / took six years for me . I’m stubborn🤪I still take pains meds just not fentanyl. I was in hydraulic wheelchair service I wouldn’t have to sit, now I can walk short distances, I have a little scooter that I use occasionally. And I have family that has been very patient ,with me thru this whole journey. I just happened across this thread. I have pretty much resigned myself to having to deal with this problem from now and have gone Ben up getting help with it. Sorry so long winded but you really can’t describe this to anyone who hadn’t experienced it, thanks