← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Discussion
Comment receiving replies
@katemn

Dear All, I am finding my Aerobika really works great hooked up to my saline solution as instructed by my Pulmonologist .. PLUS I also use it after using my inhalers .. PLUS I use it immediately after I exercise .. I find right after I exercise I am really able to bring up some "nasty" stuff with the Aerobika. THEN when reading " Member advice from 2017 Conference: "They stressed the importance of keeping your nebulizing equipment clean by use of boiling or using bottle sterilizers." .. it made sense to me that it would OBVIOUSLY also apply to my Aerobika. Since I do NOT sterilize my nebs daily .. and I have become SO conscious of sterilizing since being diagnosed with 3 MORE bacteria .. I decided to NOT stick with just ONE Aerobika .. but since they are expensive .. I did some research and decided to share my research. I am NOT recommending this to ANYONE .. just saying it worked for me .. AND if you decide to purchase from Ebay .. ONLY purchase from the SAME vendor on Ebay that I did .. I purchased from him twice (purchased from-100% rating: ravenator123 ) and the product was EXACTLY the same as the one I purchased from the Medical Supply Co.

AEROBIKA-EBAY http://www.ebay.com/itm/Aerobika-Oscillating-Positive-Expiratory-Pressure-Therapy-PEP-Device/222365799192?_trksid=p2047675.c100005.m1851&_trkparms=aid%3D222007%26algo%3DSIC.MBE%26ao%3D2%26asc%3D38530%26meid%3D770f957ccb25404b97e7b52a01662bde%26pid%3D100005%26rk%3D1%26rkt%3D6%26sd%3D162365627793 purchased from-100% rating: ravenator123 ( 1146 ) $54 w.shipping 6/19/17 $64. w/shipping

AEROBIKA-MEDICAL SUPPLY http://www.aerobika-therapy.com/order-today/ ordered 2/25/17 $90.00

Hugs to all! Katherine

Jump to this post


Replies to "Dear All, I am finding my Aerobika really works great hooked up to my saline solution..."

Consider it written down as a question to be asked. I am presently living in the NYC area in a home but hope to move to an apartment in the Atlanta, Ga area at the end of December. I, too, have been a teacher (college) for anyone interested in keeping tally of teachers/nurses in our population. Scary to ponder retirement at the end of the Fall semester. I am already obsessing on the fact that I will not be in control of the water temperature! Building was erected in 1987 so pipes etc are old. If you have any other info on your shower faucet that would be helpful for them to know at NJ (manufacturer, etc.) , please feel free to private email me if you wish. What a pleasure to do a little something for you who has done so much for the rest of us. Terry

Katherine, The booklet that came with my Aerobika sites the Electronic Steam Sterilizer (baby bottle sterilizer) as the recommended method. It says, "The four disassembled parts may be disinfected using an electronic steam sterilizer for baby bottles, following the manufacturer's instructions for use (e.g. AVENT Electronic Sterilizer). The disinfection cycle should last approximately 15 minutes. Allow the parts to cool and air dry thoroughly before reassembly." I'm only microwaving for 6 mins but maybe need to up that. It seems like the other components for the nebulizer should be okay. They are all plastic. One of the alternative methods described is the microwave steam bags but says to use distilled water. "For HIGH LEVEL DISINFECTION: If clinically necessary for the patients' disease state, the device may be cleaned after each use and disinfected once each treatment day. STERILE distilled water must be used for rinsing. To sterilize distilled water, boil it for 5 minutes." Hope that helps.

@lindam272, Linda .. this if really great UPDATED information for my File Cabinet .. when I called Aerobika directly they had NOT tested baby bottle sterilizer as a method .. personally I am going to stick with my current choice of sterilizer because it is larger /more space .. but to each their own .. just do your own research! I was REALLY glad to see they are ok with ALL 4 pieces being sterilized .. because I was concerned about what looked kind of like "fragile" rubber pieces. Good information .. thank you!

In terms of frequency of sterilization .. I REALLY think this must be a discussion with each of our doctors BECAUSE the severity /type of infection etc is so individual ie “For HIGH LEVEL DISINFECTION: If clinically necessary for the patient's’ disease state, the device may be cleaned after each use and disinfected once each treatment day.

@128128terry11t Terry thank you SO much for your offer to ask questions for me! Hugs! Katherine
1. I am currently doing 28 day cycles on/off of Tobramycin for PSEUDOMONAS AERUGINOSA, KLEBSIELLA and SERRATIA bacterias 3 cycles .. currently on 2nd Tobramycin cycle.
2. Can I use the hot water (hot water heater in condo assn set to 130 degrees) from this shower head instead of distilled water to rinse my Aerobika and nebulizers prior to sterilizing. My disposable shower head is: Kleenpak™ Disposable Shower Head Filter
https://shop.pall.com/INTERSHOP/web/WFS/PALL-PALLUS-Site/en_US/-/USD/ViewProduct-Start?SKU=gu7ucktu#attr_description For up to 31 Day Use Pall Kleenpak Disposable Shower Head Filters are supplied non-sterile and integrity tested. The double layer 0.2 µm Supor® membrane within the filter cartridge is validated for the removal of bacteria, protozoa, fungi and particles from the water supply by acting as a barrier. The filters can be used to provide water for use in topical applications such as personal hygiene. Part Number Description Pkg
KAQF4 Disposable Shower Head Filter for up to 31 days use 12/pkg
KAQF42 Disposable Shower Head Filter for up to 31 days use 2/pkg
3. Am I able to sterilize just one time a day .. after first use-disassemble and allow to air dry .. but only clean/rinse at the end of the day after second use?

I have NOT forgotten the post from my File Cabinet .. SO important for us to remember since we will NEVER get ride of those nasty critters in our lungs .. merely manage them:
From Member Linda @lindam272 We benefit from sharing information with each other. *PR0BLEM I learned from my Respiratory Therapist: I WAS NOT sterilizing my equipment DAILY! I sterilize the three main pieces of the Aerobika plus my nebulizers!

@128128terry11t Terry, you wrote "I will not be in control of the water temperature! Building was erected in 1987 so pipes etc are old. " I don't have a clue if it may/may not help you .. but when our Forum had all the discussion on hot water heater temperatures .. I sent the below email to our condo building manager as a FYI. I think it DID have some affect .. after all they do not want lawsuits. Now I think there is current questioning on JUST what the temperature should be .. but at that time it was 130. Hope it MIGHT help?? Hugs! Katherine
++++++++++++++

Could you tell me what our current water heater temperature is set at? I have been advised to check this.
Thank you! Katherine

Raise hot water heater temperatures. Turn up your water heater to 130° F (55° C). NTM patient household plumbing that did not have NTM had higher hot water temperatures (130° F or 55° C or higher), compared to households whose hot water heater temperature was 125° F (50° C) or lower.

Recent studies (09/01/15) have shown that raising hot water heater temperatures in 10 homes that had M. avium resulted in disappearance of M. avium from 9 of the 10 homes by 6 weeks.

ALSO
In my continuing research on trying to figure out my crazy disease I saw the following .. I was REALLY delighted that our Association made the choice to use at least 130 degrees on our hot water heater. Saw the below .. thought you'd be interested. Also lessen problems with Legionnaire's Disease!

NTM were less frequently recovered from household samples whose water heater temperature was >130°C (>55°C). High water heater temperatures have been associated with low numbers of Legionella spp. in household and other building plumbing (36–39).

Love it! Thank you. Terry

Printed it and will take with me to NJ. This is important for us all. Terry

I forgot to mention that I have been rinsing my aerobika and nebulizer in boiled water (boiling for 10 minutes) instead of distilled. I will ask about that as well. Hope that that is acceptable. Terry

Studies from 2015 - since then research has shown that raising hot water temps can create heat resistant strains, so current recommendation is to keep heaters at the usual temp of 120-125.

Boomer, this is GREAT question for those going to their doctors within the next few months .. GRILL the doctors on just WHAT IS the newest research on hot water heater temperature?? IS IT 120 .. IS IT 125 .. IS IT 130?? It is ALL too confusing for those of us sitting out here with different research studies .. trying to make sense of it! Then PLEASE come back to Connect with the ANSWERS from specific sources so we can get a consensus for our Connect! We all try to help each other sort out what is best for each other .. this is an example where we really need to get to the bottom of it! PLEASE HELP! Hugs to all! Katherine