← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Dear All, I am finding my Aerobika really works great hooked up to my saline solution..."
Terry, I was at NJH in May and was told to clean my Aerobika once a day. Use it, disassemble it so that it will dry again, use ii again and then clean it. They said The sterilizing should be done once a week. I use the microwave bags for that. I don't use saline though so I don't know if this process applies to your situation. Jan.
I have a question about something I have not come across on this forum. Since we all have lung disease in varying degrees of seriousness, I am wondering if anyone has any thoughts about living in a home with a radon mit system installed to keep radon levels "normal." Thank you in advance.
Want to make sure that I understand. You use your aerobika twice a day (after first use-disassemble and allow to air dry) but only clean/rinse at the end of the day after second use? Did you get the sheet where the electric baby bottle sterilizer had been crossed off as an acceptable method to disinfect the aerobika? Will ask NJ if when using a nebulizer twice a day, it need only be cleaned/rinsed after the second use. Thank you. Terry
@irene5 Isn't this something you would only have done if your house had shown positive in a radon test? This was something that was a huge issue for a while in NH here (the Granite State) but I haven't heard much about it for awhile, maybe because we have not been looking at homes to purchase. We did have our home tested when we bought it.
JK
JK - I live in Arizona where there is very little radon except more rocky areas by the mountains so there isn't a connection with MAC and radon for me. It's about soil and water, the way I understand it. Linda M
I just looked at the sheet I got from NJH and the baby bottle sterilizer is not listed so they must have revised the sheet. These are the methods listed: boiling, microwave steam bag, isopropyl alcohol, and hydrogen peroxide. Jan
Yes, thank you. When we lived in the Berlin/Gorham area of New Hampshire from 71 to 86, we did not know to check for radon. Ignorance is bliss! Every house we are looking at to buy now in Connecticut as we want to get back to our family, has high radon when we have it checked. Yet people have lived in these same homes for years and never checked. The sellers always tell us they will have it mitigated, but we are fearful of radon because of my MAC/bronchiectasis and my husband's sarcoid.(probably got that living at chimney level in Berlin). We are losing beaucoup money with each home we have thoroughly inspected and ultimately cancel. We certainly don't want to hasten our demise. Thank you for your response.
Thank you.
@colapyrus Jan, I spoke directly to one manufacturer .. who FINALLY admitted the reason a baby bottle sterilizer was NOT recommended was MERELY because they had NOT done testing on that method! You must do what you feel is right for you .. but I have used the baby bottle sterilizer method for 30 months of inhaled Amikacin nebulizers and now with inhaled Tobramycin. Please others jump in with their knowledge and experience .. I feel once again our Forum is way ahead! Plus I think I remember someone saying at the 2017 Conference they mentioned using the bottle sterilizer method? Hugs to all! Katherine
Just wondering do you sterilize after each use of the aerobika? Do you always clean in regular warm sudsy water and rinse preferably in distilled or boiled water before you sterilize? So if you use aerobika twice a day you would clean/rinse, sterilize twice a day? I have been negligent in only doing the aerobika and saline once a day ... and I am just beginning my journey. The posts and your guidance have set me straight. Now for something else: I went to National Jewish in January and they gave me a MEDfacts sheet on using the aerobika. I noticed that under "recommended disinfecting method- electronic steam sterilizer for baby bottles" -- THAT METHOD WAS CROSSED OUT. Didn't pay much attention to it when I went in January (so overwhelmed with all the info and instruction) but will ask them why it appears that that method is no longer acceptable as I hope to go to National Jewish in July. Will try to get to the bottom of that if I can. By the way, it still listed: boiling, microwave steam bag, and isopropyl alcohol as acceptable methods to disinfect. Never want to miss an opportunity to thank you, Katherine. Your knowledge, comfort, and wisdom have kept many of us sane ... or as sane as we can be. Terry