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← Return to Anastrozole Brain Fog
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I have been off the Arimedex for four months, joint pain is gone, I am sleeping again, no peripheral edema and my blood pressure is coming down closer to normal. The osteoporosis is another issue. I realize that by stopping this medication my risk for recurrence jumps up, but for me it is a quality of life issue. There is no doubt that the pandemic has severely affected all of us, but especially if you live alone and are older without nearby family. Whatever you decide is what is right for you is what you should do. I had the oncologist check my hormone levels when I recently had blood work done and they are quite low, but since there wasn't a benchmark taken before I started the medication, not sure what that exactly means but will have it checked again in October. The biggest risk is during the first two years after surgery, I had lymph node involvement, didn't do radiation or chemo, but so far am doing fine, my two years is up in December. Since I was told it would be "preventative" as my PET scan was normal, I opted out. I guess we all have to weigh our decisions on a personal level. I have no interest in trying another drug, they all have the same side effects or worse. Your neck issue could be tension, arthritis, or a bad pillow, just kidding. I wish you well, I finally started doing virtual visits with a psychologist to have someone to talk to and it has really helped.
Replies to "I have been off the Arimedex for four months, joint pain is gone, I am sleeping..."
Hi whr
I have been on anastrazole for 2 years. Did fine for a while - recently complained to oncologist that i just felt horrible.
She felt side effects would have shown up at the beginning - I disagree as I believe our bodies change and the drug accumulates. What is peripheral edema?
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Replying to whr : “ I had the oncologist check my hormone levels when I recently had blood work done and they are quite low, but since there wasn't a benchmark taken before I started the medication, not sure what that exactly means but will have it checked again in October.”
whr, I totally agree with your statement and I am exactly where you are right now. I asked my oncologist how did he know Anastrazole was working for me & he told me they take it for granted. He had to see IF there was even a test for estrogen levels. 🤷🏼♀️ I did the blood test. It was <10. No specific number and no benchmark prior to starting med. I had to call office for results and the said <10 is good. That’s not good enough fir me since I didnt have baseline number. Anyway, I’ve taken n this myself. I’m working with a hormone PA and did a saliva test after being off med for 1 month. I will perform this test again in 2-3 months since I started up the anastrazole again. During the month off I didn’t really notice too much difference in hip pain, but just overall feeling was better.
I did not get or ever been talked about Oncotype number. And my Oncologist never has said I should take osteoporosis med. I’ve been on for 1 yr 11 month and my 2021 bone density shows osteoporosis now vs osteopenia, but no recommendation on med. I had a mastectomy one side , no lymph node involvement and no radiation or chemo.
Best of luck 💜