I had been suffering from a debilitating cough and paradoxical vocal fold motion for around 3 years til I finally got the diagnosis. I was even on life support at one stage because my larynx was malfunctioning so badly. I’ve tried nortryptilline, amitryptilline but am now on gabapentin which until recently was working well. I also have seasonal hayfever and Ménière’s disease. My immunologist says the larynx and menieres is related. I’m an ugly mess when they play up at the same time. I have just got my voice back after a week of complete aphonia due to a relapse. When I have an acute attack the only thing that works is CPAP so I’m
Hoping to get a machine soon to have at home to avoid the dash to ED. It’s completely changed my life. I’ve had to retire early and it is socially isolating. But it could be worse.