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Elevated diaphragm causing COPD type symptoms

Lung Health | Last Active: Aug 31 7:57am | Replies (35)

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@nla4625

Hi Kevin -- Thanks a million for the update. I don't know if I should be happy for you or not. I guess I'm glad you don't have a paralyzed diaphragm but feel really badly that you don't have a diagnosis or treatment plan for your SOB symptoms. I quit reading heart-wrenching posts from hundreds of Mayo Connect members regarding going years with no diagnosis or relief for their SOB issues. Conventional medicine was definitely failing them, and I hope it won't fail you. If it does, please find the best functional medicine practitioner you can and have him/her take a look for underlying causes of your symptoms and treat them. I'm convinced that's the way to go, particularly when conventional medicine fails you. I talked to my pulmonologist today about next steps for me. He's astounded that my pulmonary function test shows my lungs with a paralyzed diaphragm are operating within normal parameters and said I must have had this for a long time for my lungs to be compensating so well. He agrees I'm doing the right things, ie lose more weight and build up my strength before considering surgery, and prescribed pulmonary and physical therapy for me, which I wanted. One odd thing I've traced back to my PD is that I'm grinding my teeth. Anxiety evidently results when CO2 isn't expelled properly and builds up in the body and that anxiety is causing me to grind my teeth. Hopefully, the respiratory therapist can teach me how to be sure I've expelled all the CO2 I can when I exhale. I'm investigating getting a mouth guard in the meantime. I'll really look forward to your next post when you have this figured out and are playing 3 hours of nonstop tennis again. Take care! Nancy

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Replies to "Hi Kevin -- Thanks a million for the update. I don't know if I should be..."

Hi Nancy,
Thanks so much for your kind words.
Yes, I had mixed emotions when the pulmonary doctor told me that my diaphragms are functioning properly. It was a relief to know that I don't have PD, but then what causes my problem ? is this undiagnosed disease worse than PD ? so here I'm again back to square one, still suffering from SOB and fatigue after 30 minutes of playing tennis, and still worrying and searching for the causes of this physical problem.
Regarding your pulmonary function test, I'm glad your doctor said your lungs are operating within normal parameter, it means that even though sometimes you've had excessive CO2 built up, it's probably not too bad and not too often.
I'll have my pulmonary function test on Aug 3. Did they asked you to sit in a chair and performs various breathing tests via a mouthpiece into the analyzer ? Beside sitting in a chair, I hope they will also perform an exercise testing for me since my SOB only occurs 30 minutes after vigorous exercise.
Best wishes with your respiratory therapies. I'll tell you more about my up coming tests.
THANKS, Kevin Tran