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Post Surgical Nasal Sinus Dysfunction/ENS

Ear, Nose & Throat (ENT) | Last Active: Sep 16, 2023 | Replies (28)

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@nrd1

@johnbishop-you are very fortunate you had an honest ENT whom told you it could make your situation worse.

Knowing what I know now, and hearing from so many people who’ve suffered bad outcomes, I can’t believe these surgeries are still offered.
They should be saved only if someone has been in an accident and has broken their nose and require reconstruction.

Yes. I have experienced irreversible damage. Neurologically, functionally and systemically now.

I should mention that I only found this forum when trying to find answers online, as how to cope and manage effectively. When I reached out to Mayo Clinic and explained the issues. I was accepted through Neurology first, as the ENTs knew nothing they had do offer could help. Patients can not trust the statistics that ENTs provide as “rare” occurrences as most surgical damage or “failed” surgery is never truly captured. I know my surgeon did not acknowledge my post surgical condition and started referring me out to other specialty’s. I am just one of many cases not included in the “rare” statistics. Which is why more awareness needs to be brought to the public when looking for advice before surgery. Surgeons only report the happy outcomes to their stat sheet.

I think the ENTs at Mayo, over the years have probably seen so many cases of people from all over looking for answers from unnecessary surgeries, that they most likely do their best to persuade people as they know medical management/therapy is truly the only thing can help nasal/sinus issues. Years and years of mis-information is now catching up with the ENT community. They are just now admitting that they need to be better at understanding how immunology plays a role in the nose and that these are systemic issues and not anatomical issues. Hence all the “failed” or need for “revision” surgeries.

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Replies to "@johnbishop-you are very fortunate you had an honest ENT whom told you it could make your..."

Neurologist is what I need. I have nerve damage that is literally killing me slowly. I don't know what to do. I come from Rochester, MN but live in Texas. As far as I know they won't help