← Return to I was recently diagnosed with LBD with Parkinsonism: Any advice?

Discussion
Comment receiving replies
@dgriffith24

My hallucinations are auditory. I hear a radio station playing music that is not quite tuned in when I try to sleep at night. I have a few visual hallucinations like a mouse or a shadowy figure. They don’t frighten me, but they do annoy me. I am by nature a positive outgoing person. That is changing rapidly. A lot of people or noise makes me crazy. And if something goes against the plan during the day, I go from zero to 60- agitated. Ive never been like that. The smallest of things aggravate me. My husband is trying hard to understand, but heck, I can’t understand why it happens. My smell is affected but not totally gone yet but I forget to eat daily. I don’t know why I do t think about it until supper time and I haven’t eaten all day. My memory long term is pretty good, but short term is awful. My Aracept has been the drug that I notice the most improvement from. My sediment I’m not sure about. I guess it helps, because I can sure tell when I miss a dose.
I have a twitch in my right pointer finger, and my right side is more affected.
I have been an Administrative Assistant for 42 years. I worked for an attorney, a bank President snd the local school district. I have handled many financial statements snd millions of dollars, and now I can’t do simple math. I went to bath snd body snd I could not figure out how many to get when I needed 4 and it was buy 2 get one free. The clerk had to help me. I was so embarrassed
On the outside, most days you might not think anything is wrong if you don’t look really close
Since you’re diagnosis, how Whi has the disease progressed? I worry because if you Google it, the diagnosis is grim

Jump to this post


Replies to "My hallucinations are auditory. I hear a radio station playing music that is not quite tuned..."

Totally identify " A lot of people or noise makes me crazy. And if something goes against the plan during the day, I go from zero to 60- agitated. Ive never been like that. The smallest of things aggravate me."
Have you seen any of the communication tips I have posted?

I think I am going to start a new discussion on Communication Challenges with LBD.
Do you think that would be a good idea?

Peace
Larry H

@dgriffiths, I'm glad you started this discussion both for people diagnosed with LBD and caregivers. I'd also like to invite @estpark2 to join the conversation.

I added the discussion to the Brain & Nervous System group and the Parkinson's group too. This is such a great conversation for all.