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What do you order when eating at a restaurant?
Transplants | Last Active: Jan 6, 2022 | Replies (67)Comment receiving replies
Oh, Valcyte…I took that along with Bactrim for 3 months post transplant. I’m glad the CMV has gone away. I have an ongoing thing with oral thrush due to Sjogren’s, and probably our meds. Did you have to do Nystatin in the hospital after your transplant? The dreadful “swish and swallow.” That’s to keep oral thrush away. But, not working on me anymore. So, have to get something different.
The link Rosemary shared on Vacation Tips has some good ideas on restaurant eating for transplant people. I also wanted to recommend an air fryer. It’s quick, super easy to clean, and healthy as it limits the amount of oil you need.
Good luck in keeping your kidney functions up and Mycophenolate dosage down!
Replies to "Oh, Valcyte…I took that along with Bactrim for 3 months post transplant. I’m glad the CMV..."
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I took Valcyte for the first six months after transplant because my donor was CMV positive and I was CMV negative. I stopped Valcyte in January and came down with invasive CMV in May. I am so thankful that 900mg bid Valcyte resolved the infection in 6 weeks. Regarding your thrush, maybe your newly reduced Cellcept will help? Are they thinking of giving you oral Diflucan or something else? I really like your suggestion about getting an air fryer! Do you have any favorite things (easy) to make in the air fryer? I am going to go on-line now and buy one!