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What do you order when eating at a restaurant?

Transplants | Last Active: Jan 6, 2022 | Replies (67)

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@hello1234

I can't tell you how much I enjoy "talking" with you! I take 7mg long acting Envarsus XR once a day. I also was on 1,000mg bid Cellcept and just recently reduced to 500mg bid Cellcept due to a CMV infection. May I ask why your Cellcept was reduced to 500mg bid.... Was it also an infection or were you experiencing unwanted side effects, or was it just at your one year anniversary? I take my pills at 7:15am (currently with my oatmeal) and then in the evening at 7:17pm after dinner.
Regarding fungus exposure, did they mention any tips for protecting ourselves? THANK YOU so much again for sharing all that you have learned from your research. You are incredibly knowledgeable and I appreciate all that you share! It's comforting to talk with you.

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Replies to "I can't tell you how much I enjoy "talking" with you! I take 7mg long acting..."

Nice to “visit” with you as well. Connects has been very helpful for me as I navigate my new illnesses, so when I can, I enjoy sharing what I’ve learned from my research and experience.

Wow, I just read about CMV, I hope you are finding reducing Mycophenolate helps!! Are your kidney functions ok?

My doctor is having me try reducing Mycophenolate as my liver enzymes have been so good. So, I have to do labs in 2 and 4 weeks for monitoring.

Here’s the discussion on fungus. It’s actually a great dialogue on all sorts of things - https://connect.mayoclinic.org/discussion/this-and-that-and-talk-my-transpant/?pg=130#comment-616440
The newest entries touch on the fungus issue.