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Langold (@rarelybees2889)

Autoimmune Fatigue and/or Chronic Fatigue

Autoimmune Diseases | Last Active: Nov 15 12:17pm | Replies (135)

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@oldkarl

@abrown2 Have you had a complete genetic scan completed on your son? They are getting into the do-able range for most folks now, thanks to Medicare and advanced technology. Dante Laboratories and Sequencing.com are a couple of good places. I have gone through many of the symptoms and procedures, and now I know almost my entire blood kin as wild type myeloma. Mine has ended up with some pretty serious stuff which every doctor except my birth doctor denied I could have. Get that whole genome done. It may save his life from disability and early death.

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Replies to "@abrown2 Have you had a complete genetic scan completed on your son? They are getting into..."

Thank you. That is very interesting. He had one genetic test run through our integrative Dr. I forget now what he was looking for, but the test really did not show anything of substance.
The geneticist at the children's hospital we work with is very good. Very thorough and clear. He is not seeing a reason to run a test yet. I guess not knowing what to look for can be challenging. I think it would a good idea, but I am not geneticist.