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Have you had your water tested?
MAC & Bronchiectasis | Last Active: Jan 15, 2023 | Replies (84)Comment receiving replies
Our local water company doesn't do these tests on either muni water or individual buildings.
I have read repeatedly that if you have pink slime mold it doesn't coexist with MAC. I have to clean diligently in both my homes to keep the slime away from kitchen, bathroom, etc. So I never bothered to pay for testing.
The other thing to remember is that MAC is everywhere- water, air and soil, so you really can't avoid it completely. I just try to be sensible- no long steamy showers, no hot tubs, keep water heater over 140°.
I decided years ago that my life wouldn't be ruled by MAC and Bronch. I am careful- clean house, clean nebs, mask in dusty yard and garden, etc. But I still travel, eat out, hang with friends and family.
Your decision may differ depending upon the severity of your disease and your risk tolerance.
Sue
Replies to "Our local water company doesn't do these tests on either muni water or individual buildings. I..."
Hi Sue,
This is off topic, but recently you said you had a nebulizer that you really like. I was using InnoSpire Go which I really liked, but the first one they replaced when it stopped working, and now the 2nd one has stopped working but is out of warranty. The one you use sounded like a good alternative. I would like to order it but not sure which pari that it is. I already have the trek but I don't think that was it. Thanks . Babette
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Oh, and I wrote that yesterday on the fly - the name of the organism that causes the "pink slime" is methylobacter.
Sue