← Return to Transplant: Has anyone tapered off prednisone after decades of use?

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@anndinkins

Hello looperdolly: First, I wish you all the best with your journey toward better health. Too, I encourage you to work closely with your doctors to make sure you are progressing safely as you and your doctors work to help you decrease and cease with your medication.

I was diagnosed with 4th stage sarcoidosis in 1977. My doctor had me take Prednisone for 9 years; during that period, he eventually lowered the dosage over time until he permitted me in 1986 to cease taking the Prednisone. I am now in remission and have been off Prednisone for the past 35 years; my doctor did not require any further testing, etc., and I have not been diagnosed with any complications related to Sarcoidosis.

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Replies to "Hello looperdolly: First, I wish you all the best with your journey toward better health. Too,..."

Hello! I too was put on prednisone for an acute episode of sarcoidosis in my eye and lung. I was weaned off after 5 years - and then took methotrexate and/or Imuran for the next 6 years. The sarcoid reached my heart and I needed a heart TX. My docs are concerned that the sarcoid could return - 50% chance- so they prescribe prednisone for the rest of my life.