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Replies to "Are Livedoid Vasculopathy and Vasculitis the same? I was diagnosed with LV after 7 years of..."
@msmerry, Livedoid vasculopathy is sometimes also referred to as ‘livedo vasculitis’, ‘livedoid vasculitis’ and ‘livedo reticularis with summer ulceration’. I'd like to bring in @prairiesmoke @angelasmom @mlemieux @zenk @patientrea @cleverrover to see your post and possibly answer some of your questions. Mlemieux also lives in Canada and may have some insights about care in Canada.
You may also be interested in this discussion:
- Treatment options for Livedoid Vasculopathy (LV) https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/
Pain is wearing for sure. Do you have a concern about taking Trental? Is it still working for you?
I wanted to edit my comment here but couldn't find where I could do that so I am replying to my own post. I thought of something that might be of interest to anyone doing their own wound care at home. I found some Hydrocolloid Gel Bandages that my wounds seem to like. A bit expensive but they can be worn for a few days depending on your wounds and any weeping. If I am allowed to say where I got them, I found these on Amazon, and they are made by All-Health, Advanced Fast-Healing.