Connect
← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion
(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi! I'm new here, diagnosed last January, and my name is Filis. Thank you for this info. I'm also concerned about MAC in bottled water, is it safe to drink and to make ice? What about ice and drinks at restaurant fountains? My doc told me a mixture of vinegar and water kills MAC on surfaces, faucets, etc. anyone else told this? How do you have the water tested for MAC? Thank you-all the best, Filis
Replies to "Hi! I'm new here, diagnosed last January, and my name is Filis. Thank you for this..."
Welcome, Films! Much love to you, Jen
Hi Afcardieri, I feel much the same... initially I felt so alone (& in some ways I think that is always there, a little bit) BUT then, somehow, we find this absolutely wonderful group of people that are there, to support us, to help educate us, to share ideas & offer suggestions, & just simply take us in as FAMILY! I'm not the best at reading & posting daily...I'm still working on that...but I tell you, the minute I need someone (for whatever reason), they are RIGHT there! Amazing, really! I am so grateful for this group. Words alone do not express my gratitude! It has been a true blessing place upon me! Much love to all, Jen
@jentaylor
XXOXXOX - Terri M.
Connect
Hi Filis, we are glad you found us too!