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DiscussionTransplant: Has anyone tapered off prednisone after decades of use?
Transplants | Last Active: Jul 16, 2021 | Replies (29)Comment receiving replies
Replies to "I have been on prednisone for 10 years for polymyalgia rheumatica and then try and GCA...."
What kind of "pretty sick" do you experience if you don't mind sharing? Thank you.
I have also been on prednisone for three years for Polymyalgia Rheumatica. The side effects are horrible even though it is a wonder drug for PMR. I recently tapered off completely at the advice of my Mayo surgeon in preparation for an upcoming lumbar fusion surgery. I had my first surgery yesterday for nerve decompression.
Of course the PMR has flared again. I need strong bones for the second surgery and they don’t want me on prednisone as it weakens bones as a side effect. I am curious as to what side effects you have experienced in ten years from prednisone. My worst ones are weight gain, gastritis and severe sweating episodes. I have also been told it usually disappears in 1-4 years. I feel for you in suffering with it for 10. People just don’t understand how sick it makes one feel. Sadly, I believe the medical professionals really don’t understand the disease nor truly know how to help us.
Hello and welcome to Mayo Clinic Connect, @marilynredder2367. Thank you for sharing your prednisone history and experience with the group.
Can I ask if you were on a guided taper to the point where you are now, at 7mgs?
Hello @marilynredder2367 and welcome to Mayo Clinic Connect! Thank you for joining this discussion to share your experience with tapering off prednisone.
Can I ask how you have been monitoring your adrenal insufficiency throughout your process for new members like @lendalin @looperdolly and @tarmansbks to consider?