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Low T-Cell - Bone Marrow Biopsy
Blood Cancers & Disorders | Last Active: Nov 15, 2022 | Replies (162)Comment receiving replies
Dear Lori,
I hope you are doing well! 🙂 How is your summer going? How is your health?
I realized that I missed your message in my inbox. Things have been going quite good, I started taking Monolaurin and Echinacea and physically I feel better. It is still very unclear about this reactivation - it was positive but my doctor did another PCR and it was not, he concluded that this is not that.
I still know something is going on, I have some moments in the day or week when I feel its "flaring up" so I take more monolaurin but in terms of energy it has massively improved since I started these antiviral / bacterial natural remedies mentioned above, I DO RECOMMEND EVERYONE TO TRY IT :D. The next step is a full Genome Sequencing, which I need the DNA of my parents so that would take a few more months...
Other than that, I got COVID a few days ago (even if I am fully vaccinated). I do not have fever luckily (yahh!) but I don't feel too great - I am quite positive that I will recover fast. I have to say that this is quite challenging mentally as my partner and I are on a break since a week ago. All these difficult events in our life lead to fights and communications issues. My partner lost his best friend two months ago and therefore is emotionally unavailable right now and asked for a break in order to stop this fight pattern that we have. It makes me sad after all the bad things we have been through...I want to give it a chance but I am not sure he does.
Here are the news....Let me know how you are and what you have been doing, always a pleasure to be in touch 🙂
Replies to "Dear Lori, I hope you are doing well! :) How is your summer going? How is..."
Hi @mariabrat I couldn’t let another day go by without seeing how you’re doing! It’s been 6 months and I’m curious if your EB symptoms are finally waning and you’re feeling better.
I hope all is well in your life! Have you been able to see your parents recently? Any news in the ‘partner/former partner’ situation? ☺️
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Hi! It’s great to hear from you again! Oh, I’m really relieved that you’re starting to feel better physically! Hopefully you’ve turned the corner with the worst of the symptoms. The Epstein-Barr virus never leaves the body but it can go from active to dormant again with some residual tiredness and such. So keep up your naturopathic remedies if they’re working for you!
I’m so sorry to hear you have Covid even after the vaccine. It can happen. But generally the case will be very much milder because the vaccine gave a head’s up to the immune system. The immune cells recognized the virus when you were exposed because of getting the shot and was ready to launch an immediate attack. Since it’s a new virus, we have no natural immunity towards it, hence the needed Covid Vaccine. I hope you recovery quickly!! I’m sure it didn’t help having an suppressed immune system either. Is your white blood count returning to normal?
It’s sad that your partner is still having such a difficult time accepting the passing of his friend several months ago. You mentioned she was longtime friend and so I’m sure it’s hard for him. But at the same time, from previous conversations with you, I can’t help thinking that he’s choosing to live in the past instead of appreciating the amazing, strong, resilient woman he has in his current life. You were always concerned that he was never emotionally available for you. I think you were doing all the work in the relationship, Maybe this space is good for both of you. As an ‘old wife’…I will say this. There are plenty of fish in the sea. And you deserve someone who will be your partner in every facet of your life. ☺️
On a personal note, I’m still feeling amazingly well and so grateful! Just celebrated my 2nd re-birthday with my transplant. Monday I’ll be in Mayo-Rochester all day for tests and consultations, with of course, another BMBX…your favorite. Haha. Anyway, I’m not anticipating anything but continued awesome news…but I don’t want to jinx it. 😉 Thank you for asking!
Always a pleasure catching up with you! Hugs, Lori (and when you’re ready…go fishing. Giggle).