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This and That and Talk - My Transplant

Transplants | Last Active: Feb 14, 2023 | Replies (1670)

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@rosemarya

@looperdolly, Welcome to Mayo Connect. Congratulations on 30 years with your kidney transplant. Anniversaries are special! 30 years is an amazing milestone. I want to hear about your story, but let's take care of prednisone first.
I am not aware of any of our current transplant members who have mentioned a long term usage such as you describe. I want to invite you to post your question as a new discussion in our transplant group: "Is there anyone in this community who has successfully tapered off prednisone after having been on it for decades? " That way others will see it more easily. I can help you. Just let me know!

I am 12 years with liver and kidney transplant. I took prednisone for 5 years (5 mg daily) and then research showed that I could taper off. I know that 5 years does not compare to your long term prednisone, but I want to add that it was challenging for me to do as the aches and pains, headaches, moods etc were bothersome. My Mayo transplant team suggested a taper, and my local PCP worked with me when I had to adjust the taper. I also discovered that the prednisone had been covering my exercise induced/allergy induced asthma and so that involved a temporary halt to the taper.

Here is a discussion where other members on Connect are talking about prednisone. As a member, you can join in anywhere.
Groups >Polymyalgia Rheumatica (PMR) >Tapering off of Prednisone
https://connect.mayoclinic.org/discussion/prednisone/

Here is some information you might find helpful as you get started:
https://www.mayoclinic.org/prednisone-withdrawal/expert-answers/faq-20057923
https://www.webmd.com/drug-medication/prednisone-taper

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Replies to "@looperdolly, Welcome to Mayo Connect. Congratulations on 30 years with your kidney transplant. Anniversaries are special!..."

Thank you for you reply and recommendation @rosemarya. I will attempt to start a new discussion.
And thanks for the links. If my experience is at all relevant, I would say that your transplant team led you down a good path. Prednisone is a double edged sword...