Hi, my name is Nancy and I live in western NY. Started losing my hearing around 2000 from Meniere's disease and loud noise. Had an endolymphatic stent in 2006 which helped alleviate the severe vertigo associated with Meniere's. I've had sudden hearing loss twice in 2011 and got hearing aids then (Phonak). Switched to Otican in 2011 but with progressively worsening hearing, I'm getting a Cochlear brand implant on October 4th. I'm nervous about it but feel like I'm out of options for my right ear-- only 8% speech perception at last testing this year. Everyone I've talked to, mostly in my Rochester HLAA chapter, tell me that I will hear better with the CI. Does anyone else have Meniere's and CI?
Very few in my area. I'm interested in hearing about others' experiences.
I do feel very fortunate that we have such exceptional medical resources here and have had a good relationship with my ENT and audiologist for many years.
I would recommend our HLAA chapter to anyone with hearing loss. Our programs have been on Zoom since March of 2020 and we've had guest speakers from many areas of the country , one good thing to come out of the pandemic! We are an active chapter and do everything we can to connect and offer assistance to hard of hearing people. We have a Demo Center which is a place you can visit-- live or on Zoom-- to learn about assistive listening devices of all kinds.
We also have a monthly newsletter, September through June. Our website is https://www.hearinglossrochester.org