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This and That and Talk - My Transplant
Transplants | Last Active: Feb 14, 2023 | Replies (1670)Comment receiving replies
Hi Rosemary, interesting! I didn’t realize the difference between your liver/kidney transplant and lung/heart! Well, ok, besides the obvious that they’re different organs. But that you didn’t need to wear a mask before Covid. That’s awesome. So yup, you probably don’t have to worry about the same things. That would be a good question for @danab with his heart transplant and if he needed a mask before covid.
With a bone marrow transplant, my entire immune system has been replaced with someone else’s. I’m on tacrolimus to keep my new and very aggressive immune system suppressed until my body and the new cells learn to play nice and also 2 antibiotics, antifungal and antiviral meds daily. When I’m finally off tacro and finished with all my childhood/adult vaccinations I should be able to be liberated from pills and masks! But for now I have to wear a mask and did so for a over a year before Covid hit. Doesn’t bother me at all. ☺️
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It’s interesting learning how different our transplants are, as well as how our provider advice varies. For example, my liver team suggests being masked, especially inside, during flu season. Since I was immersed in state 3 liver disease just a short time before Covid hit and I had my transplant last August, I figured masking inside anyway is going to be a regular occurrence.
So far as I know, I’ll be on Tacrolimus and Mycophenolate the rest of my life. That’s exciting that your body will eventually adjust to your new bone marrow and immune system.